Pictured is one medication, for the same person, but in two different forms. This example was a light bulb moment for me that is very...

I'm good at going down rabbit holes. Usually I waste a lot of time chasing those damn rabbits that usually don't give me the information...

**Trigger warning - this piece touches on death, medical mishaps and a challenging birth experience that could be activating** It’s been...

Preparing for a Good Death (originally written summer of 2022) *Trigger warning - this piece talks about death,anticipating death of a...

Saturday morning is set aside for Jiu-Jitsu practice. I started going a few months so I could face some fears that I didn’t realize I...

I want a simple life I want simple, yet I’d gladly take back my normal life I want a simple life, where things move and operate smoothly....

I want a simple life I want simple, yet I’d gladly take back my normal life I want a simple life, where things move and operate...

Mom was fussing with enteral supply company earlier b/c people not doing their job impacts my life. She told the supervisor "help me help...

What do you REALLY mean? I had a hallway encounter and shared it on my personal FB page, yet its well worth and deserving of a blog. So...

Another typical Sunday full of our usual activities, church, laundry, house chores, a long run and whatever else we can find to get into...

Smartphones, GPS, and advances in technology have drastically changed how many of us navigate through life. The device, the service...

WE (YOU) DID IT!!!!!! One of the few times in my life – I’m SPEECHLESS! Pearl, the Noah Mobile has found its forever home! THANK YOU just...

Kids have questions…LOTS of questions! And as parents, they expect us to have ALL the answers. Over the years, and especially now since...

There have been times when I thought God made a mistake when He gave Noah me and me Noah. There are days I think He overestimated what...

If Noah could talk, I would coach him to say: “I'm not my DOB. I'm not my MRN. I'm not my SS#. And just in case you were wondering, I'm not

I've been getting this question since Noah was two years old. My response now is the same as it was then, “I don’t know. I will cross...

Want to Know Wednesday – What can someone do to help you when you are out with Noah? Oh, this is a GREAT question. Every family may...

Want to Know Wednesday: Hoping this will be the start of a weekly win-win! I get asked questions about Noah and his condition as well as...

I am kind. I am fearless. I am loveable. I am true to myself and others. I value others’ opinions, but their opinion isn’t my truth. I...

(9/2/16) 3:58am the moment I realized I'll never have a typical life.I hear a strange noise. I'm dreaming. I hear the strange noise...